.Being.Us

TW: Psychiatric Medication I wrote this rough draft of a poem a few years ago for spoken word and never came back to edit it, but I really like it. To me, it represents finding the balance in my psychiatric medication and sort of losing myself by being over-medicated but losing my ability to maintain my relationships with people who matter to me by being under-medicated.     This is the time of day When the oceans roar The messy crash of salty waves is pain But the tearful surge is the herald of my reward   They're coming back My thoughts are riding on the clouds Where I used to live My wonderings crashing in the pattern of my name   Here comes the Storm   Boatless, I'm dead man's floating out to sea Will I go into that hurricane? Will I float until the waves lift me to the clouds, Not into the eye of the storm, but in the swirling winds?   The swirling of that storm is where I once discovered lightn...

I can't move, even to lift my eyelids. I'm only semi-aware of what's happening around me, but I'm fully awake, fully aware of my thoughts, and fully aware of what's happening to me. My therapist calls this a catatonic state, and it's happened to me in moments of extreme stress since I was a kid. It's been happening to me more often, though, lately, and it's easier to slip into this state when I'm both exhausted and delusional. I'm always resisting becoming delusional. I have intrusive thoughts 24-7, and I always have to think harder than neurotypical people to tell the difference between fantasy and reality. When I'm exhausted, I can't keep this up anymore, and the lines blur. Because the delusions I slip into are often terrifying, I can slip into a corresponding catatonic state. A catatonic state is not sleep paralysis. I'm awake before it happens. Sometimes, I'm chatting with friends in the car one moment and catatonic th...

This is a vent blog, but maybe it will give some insight into the types of changes that are hard as an autistic person: This week has been a barrage of change. I notice the tiny changes that I'm told allistics don't notice, and there were also a lot of bigger changes. First, I got a new student, which is a pretty common change; it happens about every 6 weeks. Then, I tried to do a lesson with an existing student, but our software wouldn’t work. Work told me the software had permanently discontinued service to our company, and I had to download and learn a new software, so I did. Several days later, though, they told me that the original software had been reinstated. This week, 4 lessons got rescheduled by students, my roommate was coming and going on a new schedule, and I was sleeping on a new bed. I started a new major project for work, and service techs came with noisy drills and disrupted my routines. I'm working way more hours than I can handle, and it's t...